Being the Parent of a Child With Developmental Disabilities – Part 2
This article is a follow-up to the article “Being the Parent of a Child with Developmental Disabilities”. The articles discuss some of the things a parent of a child born with Down syndrome can reasonably expect but are not normally told about. Although the articles discuss children with Down syndrome, many of the points outlined in these articles, also apply to parents of most children born with special needs.
As a parent of a child born with Down syndrome, you can expect:
- To lose a few friends, since a lot of people who do not have a child with special needs do not understand, or fit into your life anymore (their loss, true friends will be there for you).
- Your life and your spouse’s life to change drastically (there can be some tension but it can also and most likely will bring you closer together).
- To get ticked off once in a while with your child’s service providers (can be with a doctor or therapist).
- To change one or more of your child’s service providers (if a provider does not click well with you, change them since you need to feel comfortable with the person who has a major stake in your child’s overall well being).
- Your child’s healthcare providers to get information wrong or misdiagnose something (this is where your instincts and gut feelings come into play).
- To hear someone say, “I have good news and I have bad news” (for example, “the bad news is your child has cataracts and the good news is that they are in both eyes” — believe it or not, better to have them in both eyes than one eye).
- Everyone to volunteer to babysit but not be qualified to babysit a child with special needs (yes, special needs require ‘special handling’ — find nice ways to say thank you but no thank you).
- To join a local support group in your area (expect to make some great friends — you will meet some great people and realize that you are not alone).
- Someone to mention the word “autism” if you child’s development delay is significant (do not be alarmed, this will actually provide you with access to more services).
- To see your child’s therapists more often than you see the majority of your family members (you might have 3-4 therapy sessions scheduled with different providers per week; some will be twice a week).









